Tuesday, July 5, 2011

Winter in Austalia brings Cancer blues

SAD stands for Seasonal Affective Disorder. I almost wrote 'Season Affective Depression' Does that show where my mind is at today? Well, not today, but certainly earlier this week. As the days of winter draw in and there's less sunlight many people are seriously affected by this; their mood drops.

I certainly like lots of light in my space, but it's not this that 'does me in'.Having long term experience of clinical depression has taught me many valuable lessons. One is that I only drop down into a depressive state when first my body is struggling. And I've met many people who say the same. Can't help wondering if those who claim to help people with depression understand this. Perhaps at the time we've been in their office we haven't yet come to this realization.

For those who have, it's valuable news. I keep tabs on what's happening in my body now - not obsessively, just aware that if I find myself wanting to move away from my usual round of activities that's a sign. It's as if I am moving forward and can see a precipice in the distance. So instead of keeping on in that direction I know how to back off. For me, a day or two in bed may even be indicated. I don't want to  fall off that precipice, remembering too well when, without choice, I slipped so far that I didn't believe I'd ever feel any better.

It's absolutely wonderful that now I know this isn't true for me any more. When I feel the first slip on the path I remind myself that, even if I back off for a while, after some R & R (rest and relaxation) I will feel brighter again.

If you are one who feels creeping up on you an active 'backing off' from things that usually aren't a bother; if for example you start feeling yourself shrinking away when the phone or doorbell rings, you'll already recognize that as one of the telltale signs.

If on the other hand, you don't know what I'm talking about but have someone close to you - or not so close - who acts this way, do something nice for them. Show them you care. Take some of the weight off their shoulders - offer some help for one of the tasks that is making them feel overwhelmed.

One of the ways in which my multiple illnesses, including of course the long term effects of Stage 3 cancer, are having a helpful effect on my life, is that I have given up trying to work 24/7. So, working when I can get the work; not doing those things I hate; recognizing people who are drawing strength away from me; gives me permission (and understanding from those who know of my health challenges) to take a day or two out when I need that.

For those of you who are still able to work - lucky you - there's still a way to lighten your load. Look for the signs that are specifically yours. When you observe the precipice approaching, make a conscious decision to e.g. put your feet up after dinner; crib another 10 minutes in bed in the morning; ASK someone who loves you to do something they normally expect you to do (perhaps they need a reminder that you are not superman/woman); find a quiet place to rest at lunchtime instead of talking to your workmates / shopping / making that phone call to the company you owe money to.

You've probably never had anyone to give you permission to do this before - and possibly didn't know how even a short break is rejuvenating. Now you do. Go get it.

And if you have, or have had cancer, remember, the world can survive without you pushing yourself for a while - but if you push yourself right into the arms of death, this dear (sometimes painful) world of ours will truly be depleted by your absence. Take your welfare into your own hands. Refuse to push yourself so hard that you write a worse future for those you love. Rest!

Best love
Beryl

Wednesday, May 18, 2011

Jill - A Requiem

JILL - A REQUIEM

(written 7th April 2010)

Tuesday.

Yesterday my friend died.

She wasn't beautiful - except inwardly. But she wasn't 'fat and ugly' as she termed herself in one of our very recent telephone conversations. Actually, she was what my grandfather would have called 'a fine figure of a woman'. In the past, people appreciated that very thin can mean you're coming down with some fatal disease and not likely to live long enough to bring up your children. Yet in 1999, she was able to denigrate herself because of a few kilos.

She was neither very tall nor very short - but she was shorter than she'd been when we first met. The osteoporosis had seen to that. And her several other illnesses were seeing to her being brought down in other ways.

This wasn't Jill's first tough time. When she shared the limelight with me on the Midday Show with Ray Martin on Channel 9 TV it was to show the world at large what can be done to move forward after you've been struck by divorce.

She'd done it tough much of her life. But she'd always kept on keeping on. For years she helped other people move forward after their divorces and widowhood, as the facilitator of a couple of singles social groups.

And she had brought up her two boys. Fine young men now. It was one of them who phoned me with the sad news - as I was driving along North Rd Brighton in fairly heavy traffic (isn't it always, on that road?).

I'm a very careful driver. I want to live as long as possible, now I'm old enough to understand how to get the full measure of living out of every day, every moment. So I pulled to the side of the road before answering my mobile phone.

Sitting at the side of the road with your car still idling, your foot still on the brake, the constant muted roar of hundreds of cars going by, isn't the ideal setting for hearing 'I'm sorry to tell you that my mother died yesterday'.

Wise of them to allow themselves some time to let the grief and loss wash over them before they felt it necessary to start phoning around. That's the right and proper thing to do. The grief of others can never possibly begin to parallel theirs.

Yet it is slightly strange, in this era of instant communication to know a friend has been gone for twenty four or thirty six hours while you went about your own business, not knowing there was a gaping yawning hole where this person had previously resided in your world. My gosh, we all knew Princess Di was dead sooner than that!

I continued the drive to where I was expected, apologizing for being late and asked Bill for a hug, as I explained the reason. Bill works for an organisation that helps others and I know he's experienced many griefs of his own. He is for me, part of what I would perhaps call a 'circle of hearts'. People I know who understand the difficulties we run into in this tough old life. People who'll just hear what you say, without any false histrionics. 'Your friend has died. You just heard about it, coming here? Do you want to sit down and have a coffee and take a breather? Or do you want to get down to business?'

I was grateful for the choice. 'Let's get into it' and we did. His caring matter of factness gave me the option to also 'fall over' when I was ready for it - when the business was done and I needed to sit down and allow myself to move along with the feelings I was experiencing. 'Every five minutes or so a wave of nausea is washing over me Bill'.

It's so strange sitting at a table, drinking a healing beverage, while other people walk in, say hello, pass a neutral comment, not knowing. And you smile and respond to them, suspending your conversation about death and your only truly conscious thought 'My friend is dead. And I only saw her, spent time with her, laughed, read a poem about death, exactly one week ago'!

I'd taken her my poem because her death was to be no surprise to us. She knew she was going. She'd been told not to expect to see Christmas although she was only 54.

Yet so very soon? I'd thought she had at least another two or three weeks; another two or three phone conversations; another week or two to get used to the idea.

I knew she was doing it tough, breathing had become something of a luxury. And she wasn't the type of person to enjoy being pushed around in a wheelchair. When she'd always been her own 'prime mover'.

On Thursday I will go to her funeral. I expect there to be a very large turn out. Jill was a person who lived her life to the full. 'Am I?' she queried, when I put this to her just last week, sitting by her bed. Then only minutes later her great big wonderful full bodied laugh was rolling out, filling with joy the bedroom she was now confined to. How could she not know, not remember? I do hope that my reminding her - 'Yes, I suppose I did' she'd finally said 'When you put it that way' - gave her at least a little joy, put her back in touch with at least a little of the reality of her previous years when that was true.

To me, even on that day she was living her life very fully. Because she was still making her own decisions, deciding not to fight this last battle as if life on this earth is all there is.
She promised to put a flower in the fly wire screen of my front door, if she can, afterwards, 'Just to prove I'm still out there.' We both laughed heartily at her naming of the 'great frustration'. 'That would be the very worst thing to me' she claimed 'if I could see you all, but wasn't allowed to touch'.

I'm waiting for that flower Jill. I'm waiting. Don't you let me down.

Saturday, May 14, 2011

10 tips on what to say/what not to say to someone with cancer

One of the greatest difficulties for people with cancer, or any other major illness, is the constant question of: How are you? -- Do they really want to know or is this just the kneejerk question they've been trained to ask since they were young? Have you considered that every time you ask this question the person who may have been using a lot of energy ignoring their pains and other difficulties has to now think about them? What's wrong with just 'Hello'? Or 'good to see you'?

And when a doctor asks this, isn't that a really stupid question? Would you be there if you were well? Doctors often claim that they don't have time to listen to what their patient needs to tell them, but this has just wasted time. You answer 'Fine thanks' because that's what you've been trained to say. You know it's not true. They know it's not true. So then, after all this, you both have to back track to what you're really there about.

How can you address this? I've been known to say 'Next question'. And if they object to that, that has to be their problem. I'm just trying to protect myself.

And for all you well meaning people who aren't health professionals, here are:


10 TIPS TO HELP PEOPLE WHEN THEY ARE COPING WITH CANCER


1. Don’t ask them ‘How are you?’ How would they be????


2. Do say ‘I’m concerned to know you’re having to go through this terrible experience’


3. Don’t say ‘Let me know if there’s anything I can do for you’. They’re really too tired to have to initiate anything. And they’re not going to feel free to call on you for some undefined benefit.

They need you to make specific offers that they don’t have to think up.


4. Do say ‘I’d like to do something for you, while you’re going through this difficult time. I could do 1 or 2 or 3 ----------- Take your pick’. Then, if they acknowledge a particular thing or things you could do to help, really surprise and please them by adding ‘How often would you like me to do this for you?’


4a. If the answer’s ‘nothing’ at that moment, don’t insist. Just tell them, before you go ‘The offer is on the table. Ask me for anything, any time.’ and you might hand them something with your phone number on it too. They need everything made really easy for them – and don’t want to expend the energy to look up your phone number.


5. Don’t place your expectations, or fears, on them :
e.g. ‘Of course, you’ll be all right’
or ‘You’ll live’.

Please don’t say that. That’s not the truth as they are experiencing it.

And - You don’t know. They don’t know. Even their doctors don’t know.
Such statements make them feel you are trying to tell them what they must do to make you feel less threatened. And that’s such an affront, at the very time they feel least able to stand up for themselves.

6. And PLEASE don’t tell them (me) about your aunt/friend/relative or a friend who had cancer. That has nothing to do with them. And all too often these conversations end up with the story-teller finishing with a story about how that person, or someone else died from cancer. OUCH!

Focus on THEM, not on your own frailty. You need to look after your own needs somewhere else. If you must talk to someone regarding your feelings about the threat of cancer, talk to a counselor. Don’t go to the person fighting for their life in the hope that venting to them will make you feel better.[Yes, I know that's not what you consciously meant to do, but that is an underlying cause often not recognized by the person doing it.]

7. A person threatened with death often has a lot of people around them who are so frightened of what this diagnosis means for them – that the ill person may find themselves counseling and generally psychologically supporting others.

We’d all hate to think that any of our actions or words may actually be making life harder for our friend or family member when they are facing the possibility of losing their life.

I know people do this because they don’t know any better. So that’s why I give people ideas for how to do it better, so the ill person can have the space to allow grieving and healing in themselves. And Yes, I have ‘been there’, so I do know of which I speak.

The two most important words you can use to anyone going through cancer, or any other trauma is ‘Tell me’.

That gives them permission to talk to you about what they are feeling and thinking; creates a supportive environment where they feel free to speak of their fears and hopes and wishes. And you may be the only person making this possible for them. In that role you have a value far greater than you can know.

8. Ask them ‘Is there anything else you want to tell me about?’

9. Don't offer advice unless it's asked for - and then only if you've 'been there'. Even if you have had cancer yourself, be careful to remember it’s their situation you’re talking about at the moment – which may be quite different from your own. So – First – Don’t tell – Ask! And act only on their answer.

I found that those people who had actually had cancer never transgressed these boundaries. If I wanted information about their experience, or how they’d coped with something, I had to ask them. And then I knew that what they told me had relevance.

10. Ask ‘Do you want to talk about your cancer?’ If the answer is No, you might say ‘That’s all right, I’m happy to let you lead the conversation into whatever you’re comfortable with.’

Sometimes this will actually lead them into speaking of their thoughts and feelings about what’s happening to them, if that’s their need. If not, just know that you are giving your friend, family member, whoever, the chance to have a break from what is weighing them down. Remember, they’re not only a cancer patient – they are, in most ways, the person they always were, with the same interests and ability to get excited about the things that have always interested and excited them. What a blessing!

And for yourself - Think about this:

When you’ve been threatened by the possibility of dying REALLY SOON, life takes on a different meaning.

[ And if you are the one trying to stretch your personal resources beyond your own cancer, this last bit is also a gentle reminder for you. ]

It’s not just about whether we live or die. It’s about how fully we live This Moment, of This Hour, of This Day. Because, when you live each moment consciously your life feels longer anyway than if you were living without paying attention to this time you are given.

Don’t give away the ‘now’ by concentrating so hard on what you want or plan for your future that you don’t notice what’s happening right at this moment.

Live the life you have, inspired by who you are way down in your spirit. And remember, of all that makes life worthwhile, love is the greatest - whether it's someone else loving you, or you loving them. The power of love goes in a circle, it enriches those who receive and those who give.

Life's a gift, for however long we have it. Love each day for itself and when you come to the last one you'll be able to count the good fortune of having experienced it fully.

I wish you all much love and kindness if your own life. And remember the advice given by flight attendants 'Put your own oxygen mask on first'.

Want help or advice? send me an email berylshaw@netspace.net.au

My Cancer Wakeup Call - This is why I do it


Why I do it
Years ago I christened myself ‘Boots and all Beryl’ because that’s how I’ve lived my life. Many of the experiences of my life have landed me in positions where I felt I had no choice, plunged into situations I’d never have chosen. I now realise that, even  in those situations, I did jump into them boots and all. Boots and all into hanging on, making the best of a bad deal. That too has its value - and now I can see that everything I do relies on the experience and insights I’ve gathered during those times, because every day it helps me understand what others are going through when they're in trouble.
      How blessed I am that, alongside these trials and traumas I was apparently also born with a gift for creativity. 


'Another Life' ceremonies
All my experiences now flow into what I offer others, whether in my books and presentations, or for the special ceremonies I create. 
      Recently I created one of my 'signature' Another Life Ceremonies for a mother and son separated by adoption many years ago.They spoke of their losses, and now their gains in knowing one another. They made plans for keeping their loving friendship moving along more easily now they'd 'vented' their feelings. I loved being able to put all the necessary elements together to gift them with this special ceremony for the individuals they are.
        I see patterns in the ‘shape’ of each ceremony, as we work together on creating something useful that the participants love. Something to help in moving forward with strength, transcending all the old patterns that need to be put aside.
        I love my clients as I love life. You are the reason I get up in the morning.
        I’ve been designing and running these trade marked ‘Another Life’ Ceremonies since 1993, for people who had separated, divorced, or had a loved one die.

 Ceremonies for people who've 'walked through the flame' of cancer
    
My own experience with cancer became the catalyst for my beginning a new design, for people who have been faced with their own ‘life defining moment’. And now I'm looking for people with the right kind of experience to learn how to present these ceremonies in other places.There's only one of me, and so many who need this help. You can see more about the design behind these ceremonies on my website anotherlife.com.au

 Happy days in Dallas 
I've just returned from delivering two 75 minute workshops for health professionals in Dallas, Texas. I really stirred up these doctors - and others in positions of power in the health system - giving them lots to think about. Getting them to mentally put themselves in the position of their patient and asking them what memories and emotions this exercise stirs up for them is a pretty risky exercise for me. But, Hey, they followed along and joined me in some learning.

      That's one of the ways my experiences - and my expertise as a wordsmith - make me more useful to everyone else who's ever experienced illness or disaster.


Wednesday, February 23, 2011

Cancer Patients in Disaster - What's happening?

Cancer Patients in Disaster - What's happening?
Another disaster - this time in New Zealand, Australia's sister-country.
Since I shifted across from using my skills for those divorced, widowed, single parents (I call them all 'solos') into the field of helping others with cancer after my own near death from colon cancer I have, every time there is a disaster somewhere, been very aware of the additional toll that will be visited on people going through cancer treatments and other major illnesses which need ongoing care.
What if an earthquake strikes just when you are  halfway through a week of daily chemotherapy? If the hospital where you receive treatment is demolished by a 'quake? Or if all your support services shift into crisis mode and you worry that this means you will be left without the help you need? This is when our wonderful present day services truly come into play. Countries like Australia and New Zealand are blessed - as are many other modern communities : we band together across States, across land masses, across the sea.
Australians have, since the beginning of the last century, fought in common teams with New Zealanders across a world at war. That's where the name ANZAC comes from, the Australian and New Zealand Army Corps.
As I type, we have so far 150 fully equipped and self supported members of search and rescue teams in New Zealand helping them after their latest earthquake, plus teams of doctors and police. We naturally responded with our Prime Minister, Julie Gillard's offer "Whatever you need, we will give it".
In Australia we have just come out of some months of widespread devastation ourselves - Cyclones and floods in Queensland, floods in Victoria, fires in Western Australia, another cyclone down across from the North West. And right  now another cyclone in Western Australia. That is unfortunately the country we live in. "a land of droughts and flooding rains" as was chronicled in an iconic poem 'My Country' written by Dorothea Mackellar more than a century ago.
The upside of this has been that these very disasters have developed highly trained - and ready to go - teams of search and rescue men and women; body identification teams; armed services with tremendous engineering and personal skills and heavy equipment that are constantly used across our Pacific region (Indonesia, Ache, Malaysia etc etc over recent years), wherever they are needed. And our professional and armed forces teams are always in there in large numbers.
Our professionals services are backed up by deeply trained volunteer services that we call on during our own disasters. That's the way Australians have always been; we don't wait to be asked, but automatically move in to help.
I just saw on my TV one of the workers in New Zealand, striding out of a damaged building, calling out 'What do you need?'. And that's the cry we are all responding to, reaching out from one person to another. Nationalities dissolve at such times, but it's only those who have been caught up with cancer at some time whose first thoughts go to the plight of those having to navigate their way though this extra fog of concern.
When I'm in the US in less than a month to deliver 2 x 75 minute workshops for health professionals at '12th Annual International Summit on Improving Patient Care in the Office Practice and the Community' for IHI (Institute for Healthcare Improvement) in Dallas, Texas. Titled:  The Doctor-Patient Relationship: Improving Care Through Dynamic Communication, I'll keep in mind these concerns. What I offer in such professional environments is desperately needed, even more in times of great difficulty, when the wrong word can cause catastrophic trauma to someone in need.
I visualise a world where eventually all in need will be supported. When the 'rolling strife' across so many Arab States at this moment comes to and end, when all have the opportunity to vote and live a life governed by true concern for each individual's rights. May they also have what we have. It's tough enough having cancer or any other major illness. Let's all work toward a world at peace where at least natural disasters and inevitable ill health will be our only worries.
Much love
Beryl 

Tuesday, December 7, 2010

Six Courageous poems for People with Cancer at Christmas


Here's a Bonus Gift for you from an as yet unpublished book

8th December already and Christmas is on its way. But I am looking well ahead, to March 2011, when I'll be helping doctors and other health professionals find the words to use to help us, their patients - and how to use them.

For I've been invited to give 2 x 75 minute workshops at the '12th Annual International Summit on     Improving Patient Care in the Office Practice and the Community' for IHI (Institute for Healthcare Improvement).

That's in dear old Dallas, Texas. And I'm so looking forward to it.

In the meantime my heart goes out to those thousands of people coping with cancer at Christmas time, when everyone else is in joyous mode - and that can make it harder, by comparison. So I've dipped into the 5th book I wrote as I made my adventurous way beyond my initial cancer experience, to open up some of the mindset that keeps me optimistic. This is my Christmas gift to you. It's not  published yet, so read 'Cancer - a Journey' and 'After Cancer - the Journey Continues' [available through my website http://www.anotherlife.com.au]  to keep you going in the meantime -- and let me know if you simply can't wait to get your hands on the next three.

The title of this 5th book is :   Cancer - Survive or Endure             -----    and I am Surviving


IT’S JUST ANOTHER BUMP IN THE ROAD

We roll down life’s highways
byways
rivers
and streams

Slide on the ice
walk through the rain
surf across it all
for,
after cancer
you’ve learned to bounce
to fly
to step out while you can

travel the road you’re
      sentenced to take
learning your strength
      is better
      finer

Strong
more than before
smoothing the rocks and rolls
barrelling along

Seeing panoramas
slide toward you
recognising no barrier

experience
flattening the hills
as they come
calling them only
now

just another little bump in the road.
      © Beryl Shaw 29th  May 2008


AND NOW IT’S ALL OVER


If you’d asked me
seven years ago
could I endure –
possibly –
by any stretch of imagination –

all that time
all that ongoing wretchedness

Or that I would
never the less
come out the other side
praising God
whatever you believe this
            mother-of-the-womb
                        to be

And know that I would love not only life itself
but indeed
            my own very blessed
                        creative life

Would I
            Could I
                        have known
                                    imagined
that tonight
my life would be filled with stars
in a heavensent sky
            so bright
                        that it lifts me up
to stand tall
yet once again
            and still love ------


                        EPILOGUE            (to ‘And now it is all over')

                        For this is what I have done
                        in the face of everything that has happened
                        to me and those I love

Suddenly the clouds have shifted,
drifted away.

            © Beryl Shaw Friday 29th August 2008  10.23pm
           

DON’T BRING ME DOWN


They stand in their certainty

tell many – as if they knew
‘Without your health you have nothing’

Well – don’t tell me
I have no life to live
no mountains I can climb
no work or joy or love
to partake in

My experience
has not brought me to this
but is a template for others
when they choose
to hear my story
of reality
accomplishment
strength of will

A beacon for others – I am told
Incorrigible – they tell me
because I still make jokes
about cancer
and the fear that lurks around corners
            waiting for unwary souls

those who have not – yet
learned
to stretch themselves
beyond the stories others would tell

who have not – yet
learned
to hold up their accomplishments
their overcoming
of that fear
            and all those silly people
who say
because they know not
            ‘Without your health ------‘

Don’t tell me

This is the life I reside in
the light
where I shine
and trust that’s enough

to draw those to me
who live
through their pain
reach for the sky
have a life to live – and do

We have
We are
We know

the transcendence of love beyond limits
for though walking through darkness
we lift our eyes
look past the know-nothing pontificators
see our lives
our somethings
that leave the nay-sayers  behind

So – Don’t try to tell me!

                        © Beryl Shaw  8th March 2009


AND I LIVE AGAIN


How do you live after cancer?
You live like anyone else
one day at a time

or perhaps
one moment at a time

And  today I have once again learned this lesson
listening to a tape on how to be invited onto television
as I’ve been before
they told me an idea
that raised for me
my own

my own next poem
own next thought
own new thinking on what I’d written
before

People talk about our need to discipline ourselves
if we are to succeed
at our chosen ‘norm’
but for the creative spirit
discipline might mean allowing

allowing myself to start something new
when the urge strikes me
lest I lose that thought
that specific idea
this particular way with  words

might also mean finishing what I start
or allowing myself to not finish
but be a true creator
shifting from one job to another
as the thought strikes

my discipline may be
to not allow any original expression of me
to slip unaltered from my grasp

For me
this is life
the life  I choose
the life I cannot help but live

because I live
truly live
only through my loves

I am because I write
I am because family is all – well, nearly
I am because others live also
their best lives
chosen
so they tell me
for their own reasons

I would have it no other way

Use me not as your ‘seer’
I ask
question
sift
help where I may
retreat not from my own thoughts into yours
yet retreat not from loving that you think for yourself
and do not try to be a clone of me

This is living

                        © 8th March 2009


MORE THAN EIGHT YEARS ON

I look out at a beautiful blue sky
green tree 
breeze softly blowing
and I am glad to be alive

Today
I vacuumed my whole room
the one where
I spend so much time
now

and regardless of the poverty
            illness has wrought on my life
it is still a beautiful room
in a beautiful life
because I am alive to see it.

28th November 2009


THE GIFT

To have lived the life you have
well
to be able to look back
and say

I loved as much as I was able
looked on
sometimes
at the world speeding by
Threw myself into it
when I was at my best

Lifted the view of others
through my vision for a future
the way I stretched out my arms
to possibilities
hidden
for the moment
behind troubles too dense to see through

raised their hopes for me
by my decision to live
in each day I hold onto
as if it were my last

until it is

And I go forward
with a smile on my lips
having accomplished
a life
good enough
to leave as a talisman

That is a gift beyond price

And don't you forget it!

                        © Beryl Shaw 5th February 2010

I wish you a happy Christmas, Hanukkah, whatever you are celebrating. And here's my email address. berylshaw@netspace.net.au         Write to me.

Much love

Beryl




Wednesday, December 1, 2010

Struck down at Christmas?


Someone will be struck down with Cancer at this busy time of year.


Back again!
Yes, really soon after my last post I am back on the job, writing again to tide you over this busy month of December  2010.
I’m still aware that there may be many people who need to be told (by you of course) where they can find me. Especially those people - Do you know one? - who have just been diagnosed with cancer. And they'll find it even harder to cope with at this time when everyone else is going about happily, calling across the room - or the street - Happy Christmas!
And they're thinking 'Not for me it won't be.' How do they tell you? And how do you respond to them? Let me give you a few tips.
First: Don't ask them 'How are you?' They've just been diagnosed with an illness that strikes fear into the heart of the strongest - how would they be?
Do tell them 'I'm so sorry to hear you have cancer. I don't know what to say, or how to help.' In other words, be honest with them instead of pretending you know what it's like for them when you don't. 

Some of you will know what it's like. And that can be a wonderful opportunity to simply say 'I've had cancer too. It's terrible isn't it.'
Whatever your personal situation, ask what they need. If they say 'Nothing' accept that as the truth; but also feel free to suggest something that would be in your power to do e.g. 'If you ever need someone to do some shopping for you --  mow your lawn  --  take your children to school (or mind them while their other parent goes to visit in hospital) -- drive you to hospital if the doctor says you need chemotherapy  -- anything like that'.
I do find it's a big help if you offer something concrete instead of the generic 'anything' which can cause a situation where, when they come back to you, perhaps that's for something you can't actually do, so they're let down just at the time they don't really have the strength to go the next step to get that help elsewhere.
And if you're offering, hand them a piece of paper with your name, address and phone number on it, so they won't have to look for it. Make it easy for them and they'll always remember your kindness when everyone else has been written off their contact list.
And do write down what they can type into their computer to access my posts - they can read them, from someone who has been there, without any obligation to respond. And if it's the middle of the night when they have a need just when they wouldn't want to disturb you, they can come to my blog page - and go back to bed.
If it's you who has, sadly, been diagnosed at this time, I hope you know you can come to me any time for additional non-obligation help. Email me, even phone. Others have helped me during the years of my long journey; the least I can do - and truly want to do - is pass on the gift.
Or of course there are my books 'Cancer - a Journey' and 'After Cancer - the Journey Continues' available swiftly through my website "anotherlife.com.au"
And I've been thinking about the fact that any life is too short to keep the special things for special times. So often we become overwhelmed with what we need to do. Sometimes we also believe we ‘should’ keep our very special things for some special occasion. Did your grandmother stash away her ‘good’ silver, her ‘good’ linen? This poem is a reminder that if we use the special things now, we are enriching our lives now. And we live so much finer lives when we give ourselves permission to feel special on this day, and make it special.
This is most true for someone who may have to face the possibility that this thing - this cancer - could take their life away quite soon.
I've promised myself that before the year is up I am going to take down the very old, very beautiful tea set my great grandmother used to serve afternoon or morning tea on for her best friends. I'll wash it carefully, not to damage any of the hand painted flowers - deep pink, yellow, green, so pretty - and invite a couple of my very best friends to share this treat with me. I'm going to enjoy this so much. And when my daughter inherits this lovely gift she'll know that not only some long gone person she did not know used it, but her own mother's lips drank from this fine bone china cup; took food from the platter, ate from the bread and butter plate. And pass it on to someone in the next generation. I trust they'll be wise enough to use it from time to time too. Just because they want to enrich their lives in the present.

So, before you reach the end of the year all tuckered out, give yourself a break. Stop giving yourself promises only about what you’ll do for yourself in years to come. Live now. As for the future, make ------


NO PROMISES

You’ve always known, haven’t you?
to not keep the good things
those lovely things
those wonderful, quirky things
for a special day.

Today is special
Put them on your wall,
          where you can look at them
Place them on your bed,
          where you will feel their soft smoothness
Have your dinner on them

Don’t waste their beauty
            Or yours
Live your life today

                        © 17th August 2003

As always, I wish you

Much love

Beryl